Well Samantha and I went to bed at 6pm Sunday evening in an effort to get some sleep. Unfortunately neither of us was able to go to sleep so it was more like rest, until about 9pm when she fell asleep. Then I woke her up at midnight to prepare for a dr ordered sleep deprived EEG. On the prep sheet they gave us it said "Patient must stay up from midnight Sunday until the EEG test is performed" It also said "patient must bring a driver for sleep deprived EEG " This concerned Samantha because she thought they meant a driver who was NOT sleep deprived. I assured her it didn't say that, it only said bring a driver, so I could be sleep deprived too. LOL. We spent the first 2 or 3 hours cleaning the girls closet and room...FUN! Than Sam decorated things for the baby shower we plan to throw my sister in a couple weeks. About 4ish we decided we needed help staying awake so we let the dogs come upstairs, and shortly thereafter Haley woke up and joined us (um the dogs might have had something to do with that too). That was wonderful cause I dozed off while Sam did Haley's hair, Cause Sam wasn't allowed to use anything on her own hair before the test, so she felt she could not possibly start a day without putting tons of products in hair, so she used Haleys hair instead. At 6ish we got dressed and ate breakfast and left for Washington Regional. A little after 8 we were called back to a room where they stuck 23 electrodes on Sam's head, and flashed a stobe light in her eyes for a few minutes, followed by telling her to hyperventilate, then finally they wanted to test her sleeping. Sleeping was not a problem for her at that point so they got the tests they wanted. No results were shared with us at all.
Than we stopped by Subway for a drink and snack before heading to Mana for ther MRI. She was extremely nervous about the MRI as she is a bit claustrophobic , and I was not allowed back with her on this one. But she made it through fine and was told that Dr Moon likes to read his own results , so again no information was given to us. I did briefly meet a boy and his grandma in the waiting room going through much the same thing we are, so it was somewhat comforting to know we are not alone in this, and we had a nice visit while waiting for Sam to come out. Then we came home and I attempted to work a little (bad idea) I messed up a few things which I corrected this morning, and now we wait. Our appointment with Dr Moon is March 6th , which seems like an eternity away right now. And so we wait. And if anyone knows anyone going through anything similar feel free to share this blog, cause any and all information and/or support is welcome right now!
Tuesday, February 28, 2012
Saturday, February 25, 2012
girls hiking in the woods
Well after a morning of peewee basketball games, and a big win for Sierra's team, we decided it was a good day for a hike. So, not letting the pictures on Lee's deer cam of bobcats and bear scare us, we headed up to the 40 acres!
We hiked and enjoyed nature for a while , then stopped at the waterfall for some water and a snack. Not sure what Samantha was thinking in this one, but it seems to me she's expressing the importance of drinking enough water!
We found some tracks that would pass on TV for bigfoot I'm sure, along with deer tracks and various other animal tracks. We did not see any actual animals at all. LOL Perhaps cause we were being extremely loud! Sometimes it's fun just to....well .....have fun. (We weren't deer hunting after all).
Apparently some rocks are just too big to move...even for these muscles!
It was fun, it was exercise, it was a little relaxation before we tackle the MRI and EEG testing for Samantha Monday morning. (The busier I stay until I get test results, the better).
We hiked and enjoyed nature for a while , then stopped at the waterfall for some water and a snack. Not sure what Samantha was thinking in this one, but it seems to me she's expressing the importance of drinking enough water!
We found some tracks that would pass on TV for bigfoot I'm sure, along with deer tracks and various other animal tracks. We did not see any actual animals at all. LOL Perhaps cause we were being extremely loud! Sometimes it's fun just to....well .....have fun. (We weren't deer hunting after all).
Apparently some rocks are just too big to move...even for these muscles!
It was fun, it was exercise, it was a little relaxation before we tackle the MRI and EEG testing for Samantha Monday morning. (The busier I stay until I get test results, the better).
Thursday, February 23, 2012
ER = extremely rude?
Well Samantha has had only minor episodes for 2 days now, so I am thankful for that. After Monday nights trip to the ER ,because she had an episode at the top of stairs and fell to the bottom, I needed a break! Hopefully she continues to get better and we get some answers soon as to what exactly is going on with her. Because we have testing Monday and an appointment for results March 6th , I have moved back our final walk-thru for foster care to March 19th. My hope is by then we will have some answers on Samantha, and know what we are dealing with. Until we know what we are dealing with I don't think there is any way I could possibly take on raising another child. Trying to stay optimistic (a challenge for me).
Not at all impressed with ER doctors right now. Monday night we walked into the ER and she was so "out of it" they rushed her back to trauma immediately. I was hoping they would do an MRI cause they had already done a CT scan and it showed nothing the previous time. The Dr refused. I argued with him , but ultimately he won. They did some bloodwork, waited for her to "come around" and sent us home. Now it's not that they don't have an MRI in the ER. They do. They simply refused to use it, even at a parents request, stating it was only for patients who had had a stroke. When we arrived at the ER she could not talk, or stand alone, she was shaking, tears and drool all over her face, and they concede no MRI is necessary, repeated bloodwork which has always been normal, and sent us home. I hope they don't mind when I get as excited about paying their bill as they got about helping my child!
Not at all impressed with ER doctors right now. Monday night we walked into the ER and she was so "out of it" they rushed her back to trauma immediately. I was hoping they would do an MRI cause they had already done a CT scan and it showed nothing the previous time. The Dr refused. I argued with him , but ultimately he won. They did some bloodwork, waited for her to "come around" and sent us home. Now it's not that they don't have an MRI in the ER. They do. They simply refused to use it, even at a parents request, stating it was only for patients who had had a stroke. When we arrived at the ER she could not talk, or stand alone, she was shaking, tears and drool all over her face, and they concede no MRI is necessary, repeated bloodwork which has always been normal, and sent us home. I hope they don't mind when I get as excited about paying their bill as they got about helping my child!
Thursday, February 16, 2012
WAITING... WAITING
Well, we got a call from DHS and they are coming for the final? walk-thru on Feb 28th. They were very understanding when I explained that, we would like to finish, but can't actually take any kids until the problems with Samantha are resolved. Honestly I don't even allow myself to daydream about foster/ adopting right now.
Still very concerned about Samantha, but I do like the neurologist she saw yesterday, Dr. Moon. He ordered an MRI and a EEG for the 27th and we are hoping for results by the 6th of March , which is our next appt with him. He said it's possible we are not dealing with seizures, and it could still be something else. It could be something very simple or it could still be a brain tumor. I thought we had ruled those out with the CT scan but apparently not. However if her MRI comes back normal he says that will rule out tumors. Until then I am trying not to stay in a constant state of panic.......trying.
Still very concerned about Samantha, but I do like the neurologist she saw yesterday, Dr. Moon. He ordered an MRI and a EEG for the 27th and we are hoping for results by the 6th of March , which is our next appt with him. He said it's possible we are not dealing with seizures, and it could still be something else. It could be something very simple or it could still be a brain tumor. I thought we had ruled those out with the CT scan but apparently not. However if her MRI comes back normal he says that will rule out tumors. Until then I am trying not to stay in a constant state of panic.......trying.
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